Wednesday, November 02, 2011

What does it mean to be pro-choice and support disability rights?

As I mentioned in my previous post, I read a few pro-life blogs.  One of the things that they have been talking a lot about recently is the http://www.nsu.govt.nz/antenatal-screening.aspx">screening programme for Down's Syndrome.  They're pretty intent on misrepresenting it, but the way that they misrepresent and use the rhetoric of disability when doing so makes me think about some of the problems with pro-choice discussion about disability

In our legislation 'fetal abnormality' is a specific category for abortion. In some DHBs, people seeking second trimester abortions for foetal abnormalities go through a different process, and see different doctors, are treated differently from those who are seeking them for other reasons. This different status is repeated often among pro-choice activists.  There was an element of this in  the coverage of George Tiller's murder, and the way that abortions for 'fetal abnormality' were emphasised over other reasons for second and third trimester abortions.  'Fetal abnormality' is treated as a more legitimate reason for abortion, particularly late in the pregnancy, than a woman who just doesn't want to be pregnant.

I think this is extremely problematic.  I don't think pro-choice politics and disability rights have to be at loggerheads, I think they are fully compatible (and the rest of this post will at least partly explain why).  But I think a lot of pro-choice discussion about abortion and fetal impairments is not compatible with disability rights, and certainly not with the social model of disability.

I think what illustrates this most starkly is the difference in between pro-choice discourse around abortion because of fetal impairment, and abortion because of the sex of the foetus.  A post on The Hand Mirror is called  More On Abortion: Female Foeticide.  Something that I don't think many pro-choice activists (unless they were also disability activists) would be comfortable saying about abortion because of foetal impairment.*

There are two, related but distinct, reasons that people decide that they cannot continue a pregnancy based on some characteristics of the foetus. The child your foetus is going to be will take more resources to raise than the child you had hoped to have. And the child your foetus is going to be is valued less, by society and/or by you than the child you had hoped to have.

I see no moral or ethical difference, no difference based on principle, between decisions about abortion when someone has learned that the foetus is female, and decisions about abortion when someone has learned that the foetus will have an impairment. Or rather any argument that there is a difference has to be based on devaluing people with disabilities.

I think the compassion that I see many feminists extend to women who are making decisions after learning about a foetal impairment is appropriate (although not the status as somehow different from other women seeking abortions). But I wonder why they don't extend the same compassion to women who terminate pregnancies based on the sex of the foetus. I do wonder what part the fact that many western feminists can imagine themselves, or someone they know having an abortion because the fetus has an impairment. Whereas having an abortion because the foetus is female is something that other women do, in other countries.

My position is that the only good decision maker when it comes to is the person who is pregnant.**  I think people who are making difficult decisions about their pregnancy should have their decision making process taken seriously, and be treated with compassion. I do not believe that it is legitimate to deprive people of information about their pregnancy on an individual level, because of fear of what decisions they'll made. I can judge a culture that devalues girls and people with disabilities, I can try and change that system. But the problem is structural not individual.

But however a feminist articulates supporting reproductive freedom, I think treating all cases where people are making decisions about abortion based on characteristics of a foetus the same, is an important principle.

* And Deborah's companion post about abortion and disability illustrates this - she comes to the same conclusion, but uses very different language to explain that conclusion.

** I also believe, but don't think it's particularly relevant to the political argument, that it's not necessarily in the interest of girls, or people with disabilities, to try and make people who don't value them, become parents to them.

2 comments:

  1. You wrote: "There are two, related but distinct, reasons that people decide that they cannot continue a pregnancy based on some characteristics of the foetus. The child your foetus is going to be will take more resources to raise than the child you had hoped to have. And the child your foetus is going to be is valued less, by society and/or by you than the child you had hoped to have."

    There is a third possible reason, which is that the fetus won't survive if it is born, or will survive for only a very short period of time. (I know someone who decided not to abort, though she knew the fetus would live a week at most after birth--but it was a very difficult choice for her.)

    Excellent analysis, in any case. Thanks for this.

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  2. First, great article. Disability rights and "choice" are not separate at all. If we look at the kernel of the pro-choice movement, its foundation is built on the principal of equality of women as equals. The disabled community still fights for that same civil equality. And exactly to your point, their dignity begins being stripped when we subjugate them to a second set of rules based on lower value for them. You make those points quite succinctly.

    The main point of pro-choice is to allow people to make an informed and independent choice. Today, many parents of a child with disabilities do not have that option. All language used to communicate the fetuses differences are framed as "bad". I have a 3 yr old daughter with DS. Before her I was brainwashed to believe it was a "bad" thing.

    WHne she was diagnosed by surprise after birth I had a very very different experience. And most parents of children with DS speak of the amazing positive experiences they have had. There are surveys that show this (Dr. Skotko just did one) and there is demographics data (Tennessee birth and divorce records showed a lower divorce rate of parents with a child with DS than parents of a chile with only typical children).

    Yet, there is also plenty of survey data and personal stories to tell how genetic therapists and the medical community misrepresent the truths.

    Doing so strips dignity from one population and free and informed choice from the other. See my blog if you are interested in the details.

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